We begin with an account of the emergence of disability theology against the background of conceptualizations of disability in the modern period (including models of disability), disability studies, and the phenomenon of disability politics. We cannot begin talking about disability theology without attending to the relative novelty of ‘disability’ as a concept. In the nineteenth century the emergence of a norm for healthy human development led to the conceptualization of its opposite. In the intervening years, the idea of what constitutes ‘disability’ has been continually shifting, and today ‘disability is never simply a medically or culturally determined identity but is always a pliable negotiating of desires, anxieties, and needs in specific contexts’ (Swinton 2016: 21). The first section of the article concludes with a consideration of four scholars whose work has been foundational for disability theology: Stanley Hauerwas, Nancy Eiesland, William Gaventa, and John Swinton. Each of these thinkers has a distinct approach that shaped the development of the conversation in its nascent stage, 1970–2000.
2.1 Disability studies
Disability theology evolved in tandem with disability studies, as Nancy Eiesland’s work shows. As a discipline, disability studies has focused on the experience of people living with disabilities, aiming at reducing prejudice and marginalization, and improving quality of life. The study of disability (in the US) began within a less well-defined conversation about chronic illness, impairments, and disability. Disability studies thus emerged in the broad frame of healthcare concerns. The Committee on Social Adjustment of the Social Science Research Council laid the groundwork for this conversation in the United States. The Committee’s work focused on individuals’ psychological adaptations to their impairment, whether congenital or acquired (Eiesland 1994: 57–58). The US-based Society for Disability Studies, founded in 1986 by disabled sociologist Irving Zola, had existed since 1982 as the Section for the Study of Chronic Illness, Impairment, and Disability. In the UK, Michael Oliver’s political analysis of disability challenged the focus on impairment, which centred on the medical diagnosis of impaired individuals (Oliver 1984; 1990). On both sides of the Atlantic, the approach to disability as primarily a medical phenomenon shifted from the individual to the social, cultural, and political dimensions of disability. As the discourse developed throughout the late twentieth century, it expanded to include intersections in identity politics and other areas of critical theory, particularly race, gender, and sexuality.
The history of the US-based Society for Disability Studies and its journal, Disability Studies Quarterly, illustrates the unfolding of disability studies more generally. The journal started in 1980 as The Disability and Chronic Disease Newsletter, predating the Society itself. It began as a publication of a few dozen pages that included scholarly articles but served primarily as an information exchange, offering journalistic reporting and job advertisements. It became DSQ in 1986, though it retained its newsletter format until Fall 1996 (volume 16, number 4).
Disability Studies Quarterly offers a window onto the interdisciplinary nature of disability studies as well as its attention to the lived experience of people with disabilities, especially their quality of life. For example, Marcia Rioux’s article, ‘Services and Supports in a Human Rights Framework’ (1996), highlights the link between disability studies and disability politics, whereas the special issue the previous year, devoted to ‘Disability Culture’ includes articles from scholars in the fields of sociology, history, psychology, and anthropology – as well as an annotated bibliography of monographs, edited volumes, articles, works of fiction and film, and a report from university administrators about a disability-related protest and the changes it precipitated at their university. Irving Zola, longtime editor of Disability Studies Quarterly, transformed the newsletter into the journal of the Society for the Study of Disability and increased its academic standing.
Since the late 1980s universities have been offering degree programmes in disability studies, from undergraduate to PhD. While many of these universities are in the UK or the US, there are a number of programmes in Canada, Australia, and New Zealand. Beyond the English-speaking academic community, disability studies has found a place in universities and academic societies across Europe and is growing in other parts of the world (see, for example, Cushing 2009; www.disability-europe.net/about-us; and https://ajod.org).
2.2 Models of disability
As Disability Studies developed as a discipline, different approaches to disability emerged. These approaches form a key backdrop for the development of disability theology. Perhaps most significant for disability theology, Michael Oliver’s pathbreaking study (Oliver 1984) distinguished a ‘social’ model of disability from an individual model. The social model developed a life of its own as an alternative to a ‘medical’ model of disability. Since 1983, a wide variety of approaches have been developed, in conversation with a range of philosophical traditions (see Retief and Letšosa 2018). For example, a Marxist engagement with the social model of disability yielded the area of materialist disability studies.
Theologians have tended to work with three types of models. The first of these, usually called the ‘medical’ model, focuses on the diagnosis and treatment of individuals whose development or capacities are impaired in some way. The second kind of model, in contrast, considers the social dimension of disability. The ‘social’ (or ‘minority’) model of disability draws attention to individuals’ lived experience and is the cornerstone of the disability rights movement. The social model has been expanded in recent years to include neurodiversity. A third model, peculiar to theological reflection on disability, combines theological reflection on the doctrines of creation and incarnation with the study of disability to produce a ‘limits’ model of disability.
In recent years a broadening conversation about autism and other learning differences has challenged the labelling of neurodiverse individuals as ‘disabled’. Although attention to neurodiversity has not yielded a new model of disability, it has been one of the key areas of development in disability theology in the last decade.
2.2.1 Medical model
The medical model regards disability from a clinical perspective. An individual presents with symptoms, typically involving some impairment of mobility, the senses, or cognition, and a condition is diagnosed. Whether the disability is considered physical, developmental, or intellectual, the impairment is a feature of the body. The medical model thus ‘explains disability disadvantage in terms of pathological states of the body and mind themselves’ (Wasserman and Aas 2023). Disability studies emerged from a conversation about helping people with disabilities to adapt to their environment, a conversation that framed disability as a medical condition. This approach to disability was first criticized as an ‘individual’ model of disability, a framework that assumed that the individual’s medical condition was what needed to be fixed or mitigated to enable access (Oliver 1984). More recently, questions have been raised about the implications of the diagnosis of disability. Diagnosis is typically the first step in a process that tends toward cure. With many disabilities, cure is not an option; the only way to eliminate the disability is to eliminate the person (see Hauerwas 1977).
In disability theology, the dialogue between medical science and theology addresses scientific accounts of disabilities, whether due to chronic illness (such as ME or clinical depression) or impairments (physical or cognitive, congenital or acquired). Swinton offers an excellent example of the way disability theology can engage with medicine in particular. Swinton (a) attends to the spiritual needs of people with cognitive impairments or psychological complications and (b) challenges the culture of diagnosis. A medical diagnosis, Swinton argues, does not give the full picture of a person’s situation (Swinton 2020: 11–37). Depression, for example, can be diagnosed according to the DSM-V by an assortment of symptoms, and there are medical treatments for depression, including drugs and counselling. Swinton suggests, however, that, for Christians, the experience of depression cannot be divorced from Christian faith and spirituality; while depression may challenge faith, faith can also be a consolation in the midst of depression.
Moreover, as important as a scientific explanation of a person’s impairment can be, it does not answer the pressing theological ‘why?’. To say that Down Syndrome is caused by a tripling of the twenty-first chromosome, for example, does not explain why one child is born with it and another is not. Thus, a medical diagnosis (‘trisomy-21’) does not rule out divine causation. In disability theology, diagnosis is less important than a process that tends not towards ‘cure’ but towards living with and making sense of disability as it presents itself in the lives of people with disabilities and those who care for them.
2.2.2 Social model
A ‘social’ model of disability begins from the premise that the impact of an impairment depends not on pathology alone but on the individual’s physical, social, cultural, or educational context. Impairments may be more or less disabling depending on an individual’s surroundings. For example, a wheelchair user on smooth, level ground may get along as well as an able-bodied person. When she encounters a flight of stairs without a lift or a ramp, however, the difference in ability shows up. On the social model, disability is socially constructed; that is, although an individual’s condition may have a medical diagnosis, it is labelled as a ‘disability’ within a social, cultural, and political framework (see, for example, Badley, Thompson and Wood 1978).
Considering disability as a social phenomenon also creates a group identity. On this reading, the label ‘disabled’ also names a political identity. This approach to disability is often referred to as a ‘minority group’ model. Like other marginalized groups, people with disabilities call for measures to facilitate their full participation in society, such as accessible spaces, and legal protections. Elizabeth Barnes’ influential book, The Minority Body: A Theory of Disability (2016), draws out this aspect of the social model of disability.
2.2.3 Other models
As disability studies has expanded, scholars have supplemented medical and social models with a wide range of theoretical approaches. The concept of disability as interpretation is at the heart of cultural models of disability and links many alternative models. Such models rest on the idea that what constitutes disability differs depending on the point of view of the assessor. Cultural models of disability divert attention from impairment, highlighting instead the diversity among human beings’ ways of experiencing and living in the world. These differences ought to be appreciated rather than perceived only as problems to be addressed. Deaf culture exemplifies this approach to disability (see Morris 2008). Many of these theoretical approaches also consider the impact of intersecting and overlapping identities: people with disabilities are also identified by race, ethnicity, gender, sexual orientation, and religion. At one such intersection a crip-queer theme in disability studies has emerged, for example (see, for example, Bailey 2019). Many alternative models also emphasize the variability in human capacities among people, and across the lifespan of an individual. As Nancy Eiesland pointed out in The Disabled God, we are all only temporarily able-bodied (1994: 23–25). Alasdair MacIntyre made a similar observation in Dependent Rational Animals (2009). He observes that, in a well-functioning community,
those who are no longer children recognize in children what they once were […] those are not yet disabled by age recognize in the old what they are moving towards becoming, and […] those who are not ill or injured recognize in the ill and the injured what they often have been and will be and always may be […and] these recognitions are not a source of fear. (MacIntyre 2009: 146)
Disability is a common human experience, particularly in the experience of aging. Disability studies continues to generate models of disability that begin from the reality of disability as part of ordinary human life, rather than treating disability as an anomaly.
Theologians working on disability have adapted a variety of models from disability studies or advanced their own. Deborah Creamer’s influential book, Disability and Christian Theology (2009), offered a ‘limits’ model of disability developed in conversation with themes in Christian theology. Thinking about disability in terms of limits emphasizes human variation and vulnerability, an approach that sits well with a variety of themes in Christian theology. The ‘limits’ model and theological approaches to disability are discussed further below.
2.4 Founding figures in disability theology
Nancy Eiesland, Stanley Hauerwas, Bill Gaventa, and John Swinton have each shaped the foundations and development of disability theology. Hauerwas and Eiesland represent distinct ways of engaging disability theologically, and one task of this article is to chart the course of the development of methodological approaches to theological reflection on disability. Hauerwas and Eiesland’s approaches have generated distinct conversations that continue to spark debate in disability theology. Eiesland, trained in sociology, viewed the challenges people living with disabilities faced in church settings through the lens of disability studies. Her work started a conversation at the intersection of disability and theology and disability studies. Since the publication of her book, the politics of disability have continued to influence theological reflection on disability. Hauerwas’ starting point, in theological ethics, set his work on a different course, setting Christian responses to disability (particularly intellectual/developmental disability) in the broader context of the church’s witness to Christ in an increasingly secular culture. In response to secular concepts of human nature, Hauerwas advocated a theological account of disability that assumed the full humanity of people with disabilities and sought to protect their place within human community.
Swinton and Gaventa represent the practical and pastoral dimension of disability theology. Gaventa founded the Summer Institute on Disability and Theology, which has provided a space for conversation and collaboration since 2010 (‘Summer’ was subsequently dropped from the event’s title). Swinton’s work covers a broad range of themes and topics in disability theology, from theological reflections on personhood and theodicy to issues in disability, mental health, and dementia. Gaventa’s work highlights the practical side of work in disability theology.
At this juncture, it is appropriate to mention an important but overlooked text that sits, like Gaventa and Swinton’s work, at the intersection of theology and practice. The same year that Eiesland’s The Disabled God was published, a volume of essays appeared: Developmental Disabilities and Sacramental Access: New Paradigms for Sacramental Encounters (Foley 1994). The volume reflects the influence of Henri Bissonier, Jean Mesny, and Eucharist Paulhus, who developed a method for developing the faith and spirituality of people with intellectual disabilities (see, for example, www.spred-chicago.org/resources and https://spred-st-andrews-edinburgh.org.uk/about-us/local-history). The essays, written by men and women in Catholic religious orders, describe the inclusion of people with developmental disabilities in preparation for and celebration of the sacraments. In addition to the narrative dimension, several of the essays offer theological reasons for making a path to communion and confirmation for people with developmental disabilities. The volume also reprints two Church documents setting out episcopal guidance that calls for parishes to facilitate such access to the sacraments. Those two documents, both published in the 1980s, point to an ongoing conversation at the intersection of theology and disability that responds to liturgical rather than philosophical questions. Catholic thinking about disability thus first emerged as liturgical theology, and aimed not at shaping academic discourse but at the full inclusion of people with disabilities in the celebration of the sacraments and the human community more broadly (see, for example, the National Catholic Partnership on Disability, https://ncpd.org; and related discussions in Embodiment and Liturgy).
2.4.1 Nancy Eiesland and The Disabled God
Nancy Eiesland’s landmark book, The Disabled God, represented a new mode of thinking at the intersection of disability studies and theology. Her constructive theological proposal is presented in a social and political frame that engages disability studies and is rooted in disability politics. She uses ‘the minority group model […] to identify the social situation of people with disabilities’ and sees her book as ‘a political statement of solidarity with the disability rights movement’ (Eiesland 1994: 24). She self-identifies as ‘a person with disability’ and her theological writing self-consciously reflects her involvement ‘with the disability rights movement’ and uses ‘sociological theories and methods that empower and provide a foundation for political action’ (Eiesland 1994: 24). For Eiesland, disability theology is also a mode of political engagement.
Although she describes her work as aiming ‘Toward a Liberatory Theology of Disability’ (the book’s subtitle), Eiesland does not explicitly engage with liberation theology. Rather, along the lines of disability politics and identity politics more generally, Eiesland assumes that disability theology is produced by people who are themselves disabled, in much the same way that feminist theology emerged first as theological reflection by women on the meaning of their womanhood in relation to God, Christian faith, and the church. Thus her ‘liberatory theology of disability’ is not a liberation theology of disability. Liberation theology, in the work of Gustavo Gutiérrez and others, is on the side of the poor, while not being necessarily the work of the poor themselves (see Theology and Poverty and further background in Latin American Liberation Theology). The location of the theologian with respect to disability continues to be a significant theme in disability theology.
Eiesland’s illness and early death prevented her from mentoring students who might have developed her work and continued to shape disability theology. Yet Eiesland’s study was, and remains, a touchstone for theological reflection on disability. For example, Deborah Creamer’s seminal work (2009, to be considered in detail below) is built on a plot of academic ground cleared by Nancy Eiesland. Eiesland created a space in which disability came to be discussed theologically from an increasing range of angles. In Disability in the Christian Tradition: A Reader (Brock and Swinton 2012), her work is drawn into conversation with John Calvin and Karl Barth. The chapter on women and disability in the same volume features lengthy passages from her work. The Disabled God has been widely read in the anglophone academic theological world, reaching into subfields in theology that Eiesland would probably not have imagined. For example, philosopher Richard Cross drew Eiesland’s work into conversation with medieval accounts of the incarnation in his gesture ‘toward a theology of personhood’ (Cross 2011). In 2023, Lisa Powell published The Disabled God Revisited: Trinity, Christology, and Liberation, which begins from and extends Eiesland’s proposal.
2.4.2 Stanley Hauerwas
With the publication of The Disabled God, Nancy Eiesland may rightly be credited with the launch of disability theology. Yet, by 1994, Stanley Hauerwas had already been writing about intellectual disability in his work in Christian ethics for more than twenty years. Hauerwas takes a different approach: he does not reflect on the experience of living with a disability, nor does he engage with disability studies. Rather, Hauerwas observed the challenge that people with intellectual disabilities presented to theological ethics. His writing on intellectual disability aims at a critique of post-Enlightenment accounts of personhood, and consequently, ethics, that assume a Kantian understanding of the autonomous subject. With the explosion of work on intellectual disability in the early twenty-first century, his early pieces on people with intellectual disabilities were drawn into conversation with disability theology (see Swinton 2005).
In Truthfulness and Tragedy (1977), Hauerwas’ essays show how ethical reflection on personhood, a staple of theological ethics, leads naturally (if not inexorably) into theological reflection on disability. In the early 1970s, Hauerwas argued that Christian ethicists were ‘trying to put forward “person” as a regulative notion to direct our health care as substitute for what only a substantive community and story can do’ (Hauerwas 1977: 127–128). An inherent danger in defining personhood, for Hauerwas, is that such definitions can then be used to deny care to those it excludes. Against this tendency in Christian ethics, he insisted that
the crucial question we should ask about [disabled] children is not whether they are less human because of their defects, but rather how we should act toward them in order that we do not arbitrarily cut them off from human community. (Hauerwas 1977: 176; cf. Spaemann 2006)
Hauerwas’ influence may be seen in two streams within disability theology. One stream consists of theologians working specifically on intellectual disability. The publication of Critical Reflections on Stanley Hauerwas’ Theology of Disability (Swinton 2005) explored his work, considered criticisms of it, and drew his work into conversation with a range of voices in disability theology. Hauerwas’ inclusion in the symposium that eventually produced The Paradox of Disability (Reinders 2010) is further evidence of his role in the field. The other stream is represented by moral theologians who draw on Thomas Aquinas in their work on intellectual disability. Such theologians offer a distinctly Roman Catholic theological response to disability, and tend to work on the themes of personhood so prominent in Hauerwas’ work (see, for example, Hauerwas 1977: 127–131; Hauerwas 1981: 197–211; Hauerwas 1986: 100–210). This second stream is the subject of further discussion below.
Hauerwas has had his critics as well (see Swinton 2005). He has been perceived as instrumentalizing disability; that is, he used people with disabilities to make theological points, rather than allowing the experience of disability to shape his theological thinking. In the same vein (as mentioned above), Hauerwas has tended to focus on intellectual disabilities and those who live with such disabilities in the abstract rather than engaging with their lived experience (even in the case of his ‘Uncle Charlie’; see Hauerwas in Swinton 2005: 113–126).
In connection with Hauerwas’ work (as well as that of John Swinton and others yet to be discussed) Jean Vanier must be mentioned, though his legacy has been marred by posthumous revelations of his abuse of several women who had sought spiritual guidance from him (see L'Arche [n.d.]). Vanier’s practical work with L’Arche and his writing about the spirituality of L’Arche has influenced theologians. His presence in the field of disability theology is ineradicable, but no longer individual. While theologians reflecting on disability no longer engage Vanier explicitly, insights originally developed in conversation with him continue to enrich their theology.
2.4.3 William Gaventa
In 2018, William Gaventa published Disability and Spirituality: Recovering Wholeness, but he has worked at the intersection of disability and spirituality since the 1970s. His influence on the field of disability theology has been both profound and oblique. As the founder and former director of the Summer Institute on Theology and Disability, which meets annually in the United States, Gaventa made possible many interactions essential to the development of disability theology. His writing in disability theology emerges from his work as a chaplain to people with intellectual disabilities and their families.
Although Gaventa is not an academic theologian himself, his influence on academic scholarship in disability theology may be seen in his work as editor of the Journal of Disability and Religion (formerly the Journal of Religion, Disability, and Health) and his essays included in The Paradox of Disability (Reinders 2010) and Disciples and Friends (Van Ommen and Brock 2022). His work aims at understanding and supporting the spiritual needs of people with intellectual disabilities.
2.4.4 John Swinton
Resurrecting the Person: Friendship and the Care of People with Mental Health Problems (Swinton 2000) marks the emergence of a distinct approach to theological reflection on disability. Swinton’s experience as a mental health nurse and chaplain shape his pastoral and practical theological work, which places lived experience at the heart of the enterprise. He explains that Resurrecting the Person ‘is not a book about mental health problems’ (original emphasis). His concern is, rather, ‘with people whose lives have been radically altered by their encounters with mental health problems’ (Swinton 2000: 9, original emphasis). Swinton’s person-centred approach brings his unique blend of theological insight and professional expertise to bear, with a view to challenging not only our ideas about disability but also the practice of the church.
Swinton’s work pushes back against a clinical culture focused on cure. His attention to the person has not only generated new ways of thinking about dementia (Brock and Swinton 2012), disability (Swinton 2016), and mental health challenges (Swinton 2020), but responds to individualistic, competency-oriented accounts of the human person with an account of being human that centres on the fellowship of human creatures made in the image of God. A central theme of this account of human being is friendship. His first book took friendship as the point of departure for theological reflection on ‘the care of people with mental health problems’ (Swinton 2000). Good Christian practice centres on friendship as the truest imitation of Christ. His work on dementia and disability is characterized by the practice of friendship. Rather than being represented as research subjects whom he has interviewed, Swinton writes about people as one who has come alongside and walked with them on a part of their journey.